Nov 3, 2011

A little medical update.....

Since I've been so behind, It's been a while since I've posted any real current events and a really long time since I've posted about anything that has been really going on with Cohen.

I've mentioned that he developed sleep apnea this year and has been on a CPAP since March. this along with a long string of fevers and sinus infections led us to also have his adenoid removed and so we did another sleep study to see if that decreased his sleep apnea. Last week we got the results of that study, and while his sleep apnea did decrease( yea!!) quite a bit, it is still in a range of needing treatment and it also brought up some other issues.

First, this test, unlike any of his other sleep studies, showed that the CPAP was not helping and may have even been making it worse. We are doing another sleep study in a few weeks to see if these results are true or not.

Second, this test, also unlike on any of his other studies, showed some brain activity that may be indicative of seizures.

We've been down this road before when Cohen was 1 and we were suspecting seizure activity...did several EEG's and never found anything and we were discharged almost 2 years ago( so much for starting to ease off his doctor appointments;)). It certainly isn't fun to be back here. However, we are hopeful that this was also a bad reading and will not be anything. We are seeing no visual signs of seizures and the test showed most of this activity to be while he was awake which ironically happens a lot during a "sleep" study). We know that seziures are not always obvious, but right now, we are looking at that as a hopeful thing.

We go this coming Monday, the 7th for a sleep deprived EEG at 1pm and will receive the results the following Monday, the 14th.


We know, as always, that God is in control here...no matter what path this takes us down. We're praying first that Cohen is not having seizures. Also, that the answers will be clear...so often with Cohen, we get a lot of, "we don't knows" or "this doesn't make sense," etc. We are also praying for clear answers on the sleep study, so that we know how to go forward with treatment for his obstructive sleep apnea.

We appreciate everyone's prayers.

1 comment:

Monette said...

Praying everything's gotten better for you all. Any updates?