So, I got to talk to my pediatrician today, and can I just say, that it is just so awesome to feel God move so clearly in all of this.
After being told, quite specifically, by several different people, that we would NOT get to see the neurologist until mid May or later unless Cohen's EEG came back abnormal...
....we are seeing the Neurologist in APRIL( still Thursday at 1pm) and his results came back NORMAL.
Now, don't get too excited, that doesn't mean he isn't having seizures,just that he didn't have seizures when the EEG was being done... which doesn't surprise us because we didn't see the behavior that was concerning us during the EEG. But, what it does mean, is that God is totally paving the way for us to get seen quickly. Not to mention, that the neurologists are totally being proactive and seem to be taking us seriously.
Can I also just say that really the way we found out about it all was just totally God protecting my heart as well. One of the things I was really struggling over through the weekend was that I felt certain that since we didn't see any activity during the EEG that his results would be normal and therefore we wouldn't get seen soon. This was eating at me so badly and I found myself already getting worked up about ( silly, I know, but true). So as nerve racking as it was yesterday to find out first that we had an appointment this week but not know the results for sure, it was totally best... If i had found out yesterday first that the results were normal, I really I think I would have been so angry - not because they were normal but because I would have assumed
we weren't getting seen. Finding out in "backwards" order really was such a sweet gift - God knew I needed it and am thrilled he chose to oblige :)!!!
On another note, finding out the tests were normal, wouldn't have typically been a relief to me since we knew we hadn't seen what we were concerned about in the EEG, and I would have really wanted the doctor's to have seen it too. However, last night, I totally let fear grip me once again, thinking that his tests were abnormal and that he was seizing even when we couldn't outwardly see it. The idea that he was possibly doing it even more frequently that we thought just crushed me. So, the normal tests results served to alleviate that fear and come as quite a relief.
What I do know about why the neurologist decided to see us, has something to do with his arm movements being a little jerky during the videotaping of the EEG. I think I know some of the things she is referring to and they don't instantly bring alarm to mind. Keeping in mind that apart from that video, she has never seen Cohen or even heard anything about his diagnosis and physical disabilities, I am not extremely worried about this. Cohen's movements are not nearly as smooth or easy as yours or mine. She may have noticed something that we wouldn't pick up on though, so I am interested in seeing what she has to say about all of that. Also, it makes me feel like she is very observant and that Cohen will be receiving excellent care if she's willing to bring him in for that to make sure he's okay even though he had a normal test result.
We have our concerns documented on video so we know we'll be able to address our concerns when we go in even though the test didn't show anything. I am beyond thankful that we are getting that chance so quickly!!
Thanks so much for your continued prayers. I know I'll grow nervous as we approach 1pm on thursday but also know that, just like as always, God has gone before us. He won't be surprised by what we hear. We trust him because He is God, He is Good, and He loves us.
Finishing 2011
13 years ago
5 comments:
Awesome news...we'll keep praying!
What an answer to prayer! I am thankful to hear that the Lord is paving the way for Cohen to see this neurologist. He has already done so many miracles for Cohen...trusting for healing and wisdom for the doctor, and peace for you! God bless!!
Yay for God!!
I agree Emily, God is going before you and Cohen and He will bring you through. He never takes His eyes off of Cohen and He does love all of you so much. Praying that He calms all anxiety and fear as you wait on Him.
Love and Hugs, Laurie
Glad your news was good! I will definately keep sweet Cohen and your family in my prayers...espically your Momma's hearts...I can't imagine what you are feeling right now!! Stay strong Emily I'm thinking about you!:)
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