One month well check and a little O2

We had Cohen's one month well check today. He gained 6 oz. for a grand total of 6 lbs 12 oz. He was 18.5 inches long. I am so happy with his weight gain and growth. So is his doctor so we get to take him off the calorie booster which also means that I get to nurse him more often and pump less!! Yea!!! We are still going to keep me off dairy for a little while longer and are also going to go ahead and treat his reflux with zantac. Zantac didn't work for Cort at all and we ended up on Prevacid but Cohen's reflux seems milder than Cort's so maybe the Zantac will work and maybe he'll get to come off of it earlier than Cort did.

In talking to Dr. Schultz about some of Cohen's sleeping patterns,perceived comfort level, respiratory rate, and his daily noises as he sleeps and breaths, she decided to do a spot check on his oxygen. He was hanging out in the mid 80's, which is ok but not great. We gave him some oxygen and they went right up to the upper 90's - took him off and they went back down and so on. So.... we have some in home oxygen right now. He is on a low flow and will stay on it most of the time until we see a pulmonologist next week. He's okay and we don't think that anything is wrong or that he is in distress but my doctor just didn't feel good about sending home in the low 80's so in a sense the oxygen is a little bit precautionary until we can get a specialist to give us a better understanding of his lung capacity and his base line. I certainly don't love that my little guy is on oxygen and has to go back to these tubes and tape and all but I am so thankful that we have a doctor that is proactive and attentive. I am happy to have a pulmonologist on board with Cohen's treatment and am interested to see what they have to say.

It's a bit nerve racking to me at times that Cohen's hypothesized diagnosis is so unbelievably rare and that we really have no guidance as to how to treat him medically or what any future day may hold. Again, thrown into total dependence on God. ( I see a bit of a trend here....;)) - not a bad place to be certainly but sometimes a scary one - especially for someone who likes to be in control. I daily remind myself of the miraculous things God has already done in Cohen's life and know that I have to trust him with his life now, just as we tried so hard to do while I was pregnant with him.

Please pray that Cohen's need for oxygen will be temporary. Pray that we will not let the equipment and the tubes change our stress level and for us to adapt well to the limitations that the tubes present functionally through out the day.