Feb 15, 2014

I'll never catch up...

…and I'm not sure anyone even checks this anymore but I'm doing this for me. Initially, that was all I started a blog for….as a scrapbook of my family and for the grandparents to easily see pictures. After our sweet Cohen was diagnosed in utero with a fatal form of dwarfism, this blog took on a different purpose. It was therapeutic for me to write, a great way to tell God's story through his life, and served as an easy way for us to post updates and prayer requests. Over the years, life got busy and I felt pressure to post for everyone that was waiting for news, pictures, etc. I got a little overwhelmed and took a break…a break turned into a long hiatus…but I have REALLY missed keeping record of all the things my kids do.

So, I'm going to start posting again…. mainly just for me!:)  Maybe I'll be consistent….maybe not. Maybe one day, I'll go back and sort of catch up!

A quick update if anyone else reads this!! Our oldest, Cort, just turned 8 and is in 2nd grade! Cohen is going to be 6(yep, 6!!!) in March and is in an orthopedic Kindergarten classroom, and in 2012 we added another little McGowan and a lot of pink to our household…Laine, is about 17 months old!

 Recently, we've had quite a go at some winter weather for the South. A few weeks ago we had an inch or two of snow and the kids really enjoyed it. And then this week we ended up with about 4 or 5 inches. Not a lot for many people, but a ton for us. It actually snowed on three different days and we would have had more accumulation if we didn't have so much freezing rain in between.

All three of my kiddos loved the snow and we had a great hill for sledding!


Cohen


Cort


Laine



Our snow fort!


Snow craft!


Little wagon ride


Snow cream!!



Making a snowman



Sledding




Nov 21, 2013

I have something to say - about Pickles!!!

I haven't meant to be away for 2 years - I had every intention of catching up - but life happens, days go by, and then it feels to daunting! So here I am, 2 years later, with a handful of drafts and nothing new posted.

So why I am I posting today? Well, simply, I have something to say! And it's about pickles!!!

I want everyone to know about this company. Disclaimer - I've never eaten their pickles - I don't' even know if they sell them in our local stores. But I am a fan. Want to know why?

A fellow POLP( that's Parent of a Little Person:)) reached out to this company, to let them know that a  very popular name they use for the small dill pickles, is actually a very offensive word to people with dwarfism. The word "midget", due to a painful history, it's definition, and the way it is THE word that is used in every  mean joke, derogatory comment, or insult to Little People, is one that  makes most all people with dwarfism( or parent of a Little Person) cringe.

As with popular campaigns, like the popular( and great) campaign, "Spread the Word to end the Word," there is a lot of backlash. People who defend themselves by proclaiming freedom of speech...people who fight against the "overly political correctness of our culture"....people who just don't care that it's painful to others...and people who think "everybody is too sensitive."

But this company, they didn't defend themselves. There was no huge national spot light on it...no legal affair. Just a mommy, who respectfully wrote a company and made a video and get this...they listened. Because they didn't care about their freedom of speech or if this was just a parent being overly sensitive.

They. just. cared.

They apologized for unknowingly offending anyone( though clearly offense was never their intention when naming a pickle!). And simply agreed to change the name! They understandably didn't recall current products on the shelf but ceased to use any labels that were already printed and not put on jars yet. Did you get that - labels, that they already paid for, went unused!! They renamed their little pickles and here they are  - in all their glory - on a grocery store shelf. Same pickle, cute name, and in my opinion, one amazing company!



Let me be clear, I know that this company and others that use the word "midget" to name their miniature pickles mean absolutely no harm.It's a pickle and  I get that it isn't being used in a derogatory manner. The pickle company wasn't wrong, just uninformed. In the big scheme of things, is this going to make Cohen's life better? I don't know that it will.  But I know that even the  casual use of any word, rather offense is meant or not, breeds use of the word. And so I'll take it as a victory.

I don't know exactly what it's going to be like for Cohen as he gets older -  I know there are obstacles and i know life won't be easy but we pray he'll take it in stride. I don't know when he'll start to notice the stares or when he'll get knowingly made fun of. He already knows when he gets left out. And it's heavy on my heart to think of the day when someone might be cruel to him because of his differences. But things like this make me a little more hopeful.

As parents, we hope to teach Cohen to let words like this roll off his back. As a mother, it's something I'm learning to do....not to give power to the people who use them. To put our trust and identity in God and who He made us to be and not how people perceive us. But wouldn't it be nice, for a kid, who already has to overcome so many obstacles, to just not have to worry about this?

In a world where it's pretty safe to say that most individual people and companies care more about their freedom of speech and their bottom dollar then about others, this company is different. I salute different, around here. Maybe one day a company or a person that cares more about another person's feelings and dignity  then themselves won't be so newsworthy.

 But today, If they sell Cain's pickles on your grocery store shelves, buy them!! I'm not asking you to boycott other pickle companies, but let's support one that deserves it! Help me thank them for caring about my son more then their tradition and profit margin!

Oh, and big high fives to this mommy for advocating for her child and all of ours too!! 

*** I don't' claim to know all the details of exactly how everything happened but his is just my thankful take on the whole situation!

Nov 3, 2011

A little medical update.....

Since I've been so behind, It's been a while since I've posted any real current events and a really long time since I've posted about anything that has been really going on with Cohen.

I've mentioned that he developed sleep apnea this year and has been on a CPAP since March. this along with a long string of fevers and sinus infections led us to also have his adenoid removed and so we did another sleep study to see if that decreased his sleep apnea. Last week we got the results of that study, and while his sleep apnea did decrease( yea!!) quite a bit, it is still in a range of needing treatment and it also brought up some other issues.

First, this test, unlike any of his other sleep studies, showed that the CPAP was not helping and may have even been making it worse. We are doing another sleep study in a few weeks to see if these results are true or not.

Second, this test, also unlike on any of his other studies, showed some brain activity that may be indicative of seizures.

We've been down this road before when Cohen was 1 and we were suspecting seizure activity...did several EEG's and never found anything and we were discharged almost 2 years ago( so much for starting to ease off his doctor appointments;)). It certainly isn't fun to be back here. However, we are hopeful that this was also a bad reading and will not be anything. We are seeing no visual signs of seizures and the test showed most of this activity to be while he was awake which ironically happens a lot during a "sleep" study). We know that seziures are not always obvious, but right now, we are looking at that as a hopeful thing.

We go this coming Monday, the 7th for a sleep deprived EEG at 1pm and will receive the results the following Monday, the 14th.


We know, as always, that God is in control here...no matter what path this takes us down. We're praying first that Cohen is not having seizures. Also, that the answers will be clear...so often with Cohen, we get a lot of, "we don't knows" or "this doesn't make sense," etc. We are also praying for clear answers on the sleep study, so that we know how to go forward with treatment for his obstructive sleep apnea.

We appreciate everyone's prayers.

Jul 4, 2011

4th of July 2011

4th of July Burns/McGowan Style..good food, good friends, S'mores, and fireworks......good times.....
























































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Jun 30, 2011

Beach with Grammie and Papa 2011

Almost every summer, we head to the beach with my family. It's always such a great trip and my boys LOVE the beach!! The pictures really speak for themselves!!




























































































































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