Cohen has had a decent day. They took out his feeding tube and want to see how he'll regulate himself and gain weight if we just let him eat what he'll eat. He did okay today but not super. He took 3 of his bottles pretty easily, 1 with some coaxing, and 3 of them he only took about 2/3 of it, and we still have one more to go. We'll find out tomorrow if he gained any. He does seem a little more tired today. The doctors took him off the room air but then decided to let him stay on it as he builds up his endurance and strength with eating. We feel like that is probably a smart move instead of changing everything all at once.
They did Cohen's vision test today too and he passed. Yea. They were concerned because apparently some babies with certain skeletal dysplasias can have some pretty serious eye problems so we were really excited about that.
Chris and I are pretty tired today. Our energy seems to come and go about every other day but we're hanging in there. We just continue to be amazed and feel so thankful at every day we have with him. Yes, our God is good.
17 comments:
Awww! He is just such a sweetie!
He is such a precious little boy! We are continuing to pray and are excited about the possibility of him being home with you by Easter!Praise God!
Love to you all!
Geoff and Brenna
He has got beautiful, big eyes!
I am still amazed and so excited to read every update. Cohen has been a great reminder to me of just how powerful God is. He is absolutely precious. The last picture looks so much like Chris. Having done the NICU thing, I am praying specifically for rest and healing between the coming, going, work (Chris) and pumping (Emily). Your faith is amazing and has been a blessing to so many.
Carrie
He is SO CUTE. I love the wide open eyes!
Oh Emily and Chris,
He is just beautiful. I am praising God that he continues to pass his tests and amazes you. What a treasure and I agree to ease him gradually one thing at a time. He is doing so good.
Praying for you both to be able to get some good rest and build your energy back up. This has been quite a few weeks for you. Praying him home for Easter or soon after.
Love, Laurie in Ca.
I accidentally clicked the wrong button and it enlarged the picture of him taking his bottle and those beautiful eyes were suddenly looking at me, bigger than life. Those gorgeous eyes are so full of life and the power of God shines through them until I have been brought to tears. Praise you, Lord, for this miracle baby and sweet reminder of your awesome power.
he is so, so beautiful. what a gift he is.
chrys
He is quite handsome!
What a beautiful boy. We are so pleased to read each new update. He truly is a little miracle. Here's hoping you're home in time for Easter!
What a beautiful little boy, and what a living, breathing (!) example of God's power and goodness. God, please use Cohen to do great things for your kingdom!
I've never met your family (as I'm sure is true with some others that leave comments on your blog), but through the grapevine I have heard of your family's story. You have been in my prayers over the past months. What a precious miracle Cohen is. I commend your family for sticking through this and just want you to know that you all will remain in my prayers. Hopefully you will be able to take your baby boy home soon. He is beautiful!
Chris and Emily,
May the God of peace this Holy Week continue to strengthen and bless you through this gift of life - and as we prepare to celebrate our own new life in Him, we will continue to praise! Thanks for sharing in your faith journey - we have been invited into a piece of your heart song, and it echos for the Lord.
Peace of Christ this Holy Tuesday,
Shannon Hayes
He is just so precious!
Chris and Emily,
We have been praying for you all! It is so amazing to see God's miracle through Baby Cohen. He is absolutely beautiful.
Luke and Alecia Clamp
Thank you so very much for sharing your family with us. I check-in on you all each day and am continuing to pray that God will meet all of your needs. Cohen is such an amazing blessing and miracle in the truest sense of the word. I love seeing his pictures and reading about his progress. While I do not know you – you all are very important to me. Cohen is never far from my mind and prayers. May God continue to bless you all in every way. With love- Amber
SWEET!!!! These pictures are absolutely precious. He looks so alert, like he knows exactly what's going on. What a wonderful little blessing!
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