Cohen is doing pretty well this morning. The last 12 hours have been hard for Emily and I because his oxygen levels have been regularly dropping too low, and he is currently on a little oxygen. On the good side, they did a chest x-ray this morning and his lung tissue still looks good. He also has taken the last 2 bottle feedings completely. As for the rest of the fam, we decided to send Cort to the grandparents for a couple days. It was hard to do that because we feel like things have been weird enough for him here, and to send him off changes things more, but the truth is a couple days of "normalcy" at the grandparents may be better for him than a couple days of attempts at normalcy here. Oooh- Cohen's oxygen is now over-saturating, which means they get to turn it down and let him work more on his own. We like it when it swings that way. In other news, we are getting the house duct work and carpet thoroughly cleaned in hopes of bringing Cohen home to a more lung-friendly environment. This also means our cat Mowgli is getting the boot. We have actually been trying to pass him off for a bit now because he just doesn't get along with kids well, and we're not getting rid of the kids! My sister graciously took him back to Athens GA as a temporary fix, so if there is anyone out there that wants a beautiful 5 yr old long-haired cat, let us know. I should warn you though, he has gotten into the habit of marking stuff.
8 comments:
Ok, so I said that Ed and I would help in any way we could, but I have to draw the line when it comes to cats! :)
Ah, life in the NICU! One step forward, two steps back. Slowly, but surely, defying odds and glorifying God every step of the way, little Cohen will be home with you. Praise God. :)
Praying for things to balance out for Cohen and soon. He is doing so amazingly wonderful and great x-ray results. Praying for this little miracle to be going home with you soon. Thanking God that Cohen is so strong.
Laurie in Ca.
It's been so encouraging reading your updates. We are praying for Cohen and for y'all! Thanks, God, for the gift of Cohen!
Dear Emily,
I came across your blog just a few weeks ago through Chrissy's blog(Eva Janette). We lost our little boy, Tristan, to Trisomy 18 on January 27th - we had 56 incredible days. Therefore, I certainly understand the excitement as you celebrate another precious day with Cohen. I loved the comment a few posts ago regarding "We need a nursery". Oh yes, I remember how we felt realizing we were actually bringing Tristan home and able to set up his bassinet, something we never believed would happen. I have been praying for you and your family since I found your blog and will continue to do so in the days ahead. May the Lord continue to bless your sweet family with lots of time and give you extra strength emotionally and physically to cherish every day you have Cohen.
Sincerely, Yvette Hostetter
www.tristanasher.blogspot.com
Hi - Your story is amazing. I came across your blog because of a google alert for thanatophoric dysplasia. I received the same diagnosis as you at 20 weeks and carried my baby to term too. She died after about 45 minutes and even though it was immensely difficult, there was also joy in sharing her brief life. I know the doctors probably did not give you any hope, but your faith kept you strong. This is truly a miracle.
Liz Rhodes
Praying that Cort enjoys his time getting loved on by his grandparents. Praying Cohen continues to breathe well with less oxygen. Praying that you guys are able to get a little rest and time to enjoy your precious little miracle.
Rachel in PA
I remember thinking while we were in the NICU that the hardest part was having my other boys at home, and things not being normal for them. It will change, and you will have a new kind of normal!
He is precious.
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